Friday, June 1, 2007

June 1, 2007



"There is surely a future hope for you, and your hope will not be cut off." Psalm 23:18

Kyle is 102 days old and the roller coaster ride continues. We found out that he has a few small calcium particles in his kidneys, but too small to be considered stones at this point. The doctor believes that these deposits will dissolve and not need to be 'passed'; apparently these deposits are common with babies that are given diuretics.

We still do not know the reason for Kyle's high blood pressure of late. If Kyle's blood pressure continues to be over 100, a consultant will be brought in to run some tests to try and shed some light as to the cause. According to doctor, Kyle might need to be on some medication to keep his blood pressure under control. This is also something that can correct itself over time.

Today, Kyle was supposed to have something done called a 'swallow study'. This test is administered by placing a colored die in Kyle's bottles. As Kyle is feed, x-rays are taken during the feeding to determine whether the milk is going in the esophagus and/or if any is going in his lungs which can cause him to aspirate during his feedings. X-rays are also performed after the formula starts to digest to very if reflux is occurring.

The swallow study was put on hold today because the retina eye specialist needed to see him at the same time the study was to be performed. We found out this morning that Kyle needs to have lasik surgery on his eyes because the ROP has become more active. Twenty years ago, babies in Kyle’s position would eventually go blind. The retina specialist believes they have caught this early enough for a successful outcome. We won’t know anything for 1-2 weeks after the surgery if the ROP has stopped spreading and whether any scare tissue has developed. A downfall of the surgery is that Kyle could loose some peripheral vision and possibly need to wear glasses. The surgery is scheduled for Monday. Unfortunately, Kyle will need to be put back on the ventilator a few hours before, during and hopefully only a little while after the surgery. Because of this Kyle will be moved back to the level 3 NICU until he is off the vent. We are asking for your prayers for a successful surgery and a quick recovery for Kyle.

On a happier note, Kyle’s weight is 5 pounds, 2.5 ounces. Yesterday I was able to give Kyle a bottle for the first time….and tonight I get to give him a bath!

Sometimes it is hard to understand God's plan, but His love for us is constant. We are so blessed.

In Christ,

Joe, Jennifer, Madison and Kyle

3 comments:

Anonymous said...

Dearest Joe & Jennifier & Madison
Those are such beautiful pictures of Kyle, looks like a picture of health with those bright eyes.So sorry to hear about all the problems he is having again, I thought you were on the road home soon, but like you said God has His plan and sometimes it is hard to understand. I just think of that song""Will understand it all bye and bye"" one day we will understand it, but it is hard to at this point I know.I know I have had questions in my life several time and can't understand why things happen, but we have to remember God doesn't makes mistakes and He does things in His timing.I sure will be praying for Kyle that his surgery will go good and he will recover real quick. He is a fighter and he will come thru flying I'm sure.

Joe I am glad you got to get there and feed him and give him a bath before he has to have surgery, since you hadn't got to be with him in a while.He looked so cute in his blue, I told Jennifier that was his color for sure. Will give him a big hug and kiss from me and I will be praying for you all along with my sisters. You take care and enjoy every minute with him.

Love & Prayers, Aunt Sandra

Anonymous said...

Hi Joe,
Yes, it does sound as though the challenges are continuing but they still seem more hopeful than earlier concerns. Kyle does look so content and beautiful in the two pictures you posted. I am sure he is delighting in being attended to by his Dad! We will certainly be praying for a successful procedure for his eyes and for a simple explanantion for the high blood pressure issues/favorable feedback on the feedings and digestion and for the kidney deposits to disperse on their own!
You have an amazing son. Laura

Aunt Karen said...

Jenny, Joe and Madison,
We watch for your updates every day and enjoy them so much. We know that these bumps in the road will soon be behind you, just like so many other concerns God has worked out. I'm still holding out hope that you will have Kyle home when we go to Akron for the wedding of Earl's niece later this month. It won't be long now before you are together as a family in your own home. You have gone through a lot to get to his point, but you have been faithful to God, and He has been faithful to you. We continue to pray for you all every day, as does our church and many friends with whom we have shared your needs.
Love,
Aunt Karen