Sunday, May 6, 2007

May 6, 2007

"Always be joyful and never stop praying. Whatever happens, keep thanking God because of Jesus Christ. This is what God wants you to do." 1 Thessalonians 5: 16-18 CEV

Today was such a fun day with Kyle and we praise God for it! He kept doing cute things, at least his mommy thought they were cute. First, he was smiling and smiling! I doubt that they were genuine smiles (his nurse said they could be or he could just be exercising his mouth) as he is so young, but none the less, he kept smiling when I was talking to him and it just melted my heart. He also kept doing this thing with his pacifier. While he sucks on it, he'd hold it with both hands and eventually he'd end up pulling it out of his mouth. He would still have a hold of the pacifier in his hands, but he would stick his tongue out and root around trying to find it. He would get so mad looking for it, and here it was in his hands the whole time. I'm easily amused!

Kyle is doing great on CPAP, his oxygen level was even down to 25% today. We did kangaroo care last night and today. Yesterday, Kyle did it on CPAP as his respiratory therapist was able to rig something so that the alarm didn't ring. Tonight, Kyle did it on the nasal cannula and did awesome! He really seemed to enjoy the freedom the nasal cannula offers compared to the CPAP. For the first time he could actually lift his head up and switch sides while laying down. It was cute to seem him move around and then snuggle back in to get comfy. Doesn't seem like much, but it has to be annoying for him to always have some contraption attached to his head...the top picture above was taken after we kangarooed and Kyle still had the nasal cannula on, the other is wearing the CPAP gear. It's a big difference.

In regards to Kyle being transferred to Akron Children's would be done via an air ambulance. These are private fixed wing aircrafts that are equipped with oxygen and all the monitors Kyle needs. A nurse would accompany him on the flight as well. Unfortunately, we received some disappointing news Friday from insurance as they denied our request to have him transported home. When Kyle was born, Joe spoke with our insurance company and they said when the time comes, it would be covered. The doctors are saying anytime after Tuesday Kyle will be ready to travel but it doesn't look like it is going to happen. We are going to appeal the insurance decision and are praying that it ends up being covered. Otherwise, Kyle will come home directly to our house via car (too many germs on a commercial flight) when he is discharged completely from the hospital, which we are expecting to occur in about 4 - 6 weeks.

God bless you all.

In Christ,

Jennifer, Joe, Madison and Kyle


Aunt Karen said...

We love hearing the good news about Kyle's progress and all the emotions that go along with it. His little personality is starting to show, giving his mommy a beautiful glow.

So, we now have another area on which to focus our prayers - Kyle's trip home. We will be praying that God's will be performed, in whichever way he is transported, and when. Of course, we would all like to see you settled together in Akron as soon as possible. In my finite mind, that would be the better way. I hope God sees it that way also, but He does see the bigger picture, so I trust Him to accomplish whatever is best for everyone.

"Trust in the Lord with all thine heart and lean not unto thine own understanding, but in all thy ways acknowledge Him, and He will direct your paths."
Proverbs 3: 5-6
Love you,
Aunt Karen

Anonymous said...

Dear Jennifer,
What a cutie Kyle is! You are doing a wonderful job mothering him and Joe is becominq quite the Mr. Mom. He made appetizers and dinner for Bill and I for our joint Birthday/Mothers Day event. Madison even helped clean the house for us.

We are hoping that the insurance company will come through for you so that your family can be reunited sooner rather than later. I also hear that Joe and Maddie will be visiting this weekend. Awesome.


Anonymous said...

Jennifer, The progress seems to be increasing more rapidly now. I love hearing the details of Kyle's development. The accomplishments seem much more monumental than just you being pleased by them. We are each delighted by each new achievement! And, sadly, we frequently take these advances for granted in full term babies. It is as if God has slowed down this process in Kyle so we can all witness, be reminded, be enthralled and in awe of just how elaborately designed we are. Kyle has touched many hearts and impacted many lives already.....what a blessing through such a painful and challenging ordeal.
I, too, will be praying that you get to bring him home to Akron if that is indeed in accordance with God's will. We only want what is best for each of you. Laura

Anonymous said...

Hi Jennifer,
We are rooting for you guys here at HCC! What a wonderful time for all of you to be experiencing God's love through your beautiful little Kyle. We hope to see you home...completely...very soon! Our thoughts and prayers are with you.
Pam Hunt