Friday, May 4, 2007

May 3, 2007

"Yet you brought me out of the womb; you made me trust in you even at my mother's breast. From birth I was cast upon you; from my mother's womb you have been my God." Psalm 22:9-10

Kyle had a big day today. This afternoon he began having some A's and B's (where he stops breathing and his heart rate drops). His nose has been very irritated/swollen the last few days because of the harsh prongs of the CPAP. This afternoon it got to the point that Kyle was so bothered by the sores in his nose that it was interfering with his breathing. Although they usually slowly wean the babies from CPAP to nasal cannula, because Kyle's nose was so sore, they decided to try him on nasal cannula today. We were very encouraged because Kyle did GREAT...for about seven hours. Then, his little body just pooped out. They now have him on yet another breathing machine, which is called an arabella. This machine is a little different in that Kyle has a mask over his nose area, as opposed to the prongs up his nostrils. They have to rotate the arabella every six hours with the CPAP because this machine, while gentler on Kyle's nose, irritates the skin around the baby’s nose with the constant air pressure. But, at least this will give his poor nose a break and hopefully allow it to begin healing. We're a little bummed that his lungs are finally able to handle the CPAP, but his nose isn't! It seems like there is always a catch 22 in the NICU.

The pictures above were all taken today so you can get an idea of the different breathing machines Kyle has been on throughout the day. The top one is the arabella, the middle is the nasal cannula and the bottom is the CPAP.

God continues to give strength and support through His grace. He is sustaining us each and everyday. Without Him we would be lost.

Much Love,

Jennifer, Joe, Madison and Kyle


Anonymous said...

Hi Jennifer, Joe and Madison,
I am so encouraged by Kyle's progress! He is now at the age where he can really start to make some positive changes. He is so cute and now looks like a newborn - only a little smaller! I am thrilled to hear the results of the head ultrasound. I continue to pray that the CMV tests come back negative. Much love to all of you.
Aunt Kathie

aunt karen said...

Well, we've all certainly learned the concept of "one day at a time", haven't we? The days are getting easier, but still there are occasional bumps in the road. God has taught us all lessons as we walk in faith with Kyle. And we know that He is faithful to keep that which we have committed unto Him.

"For the which cause I also suffer these things: nevertheless I am not ashamed: for I know whom I have believed, and am persuaded that he is able to keep that which I have committed unto him against that day." 2 Timothy 1:12

We are curious about how Kyle will be transported back to Akron. Maybe you can share that once you learn the details. Will he need to go by ambulance, with special equipment, etc., or can he go in a plane? Does a medical professional need to accompany him? What are the special requirements for his care as he travels? Are there health concerns about being exposed to the public? If he flies, would it be on a commercial airline, or some sort of medically-equipped private plane? It's fun looking ahead to the future!

You are always in our thoughts and prayers.
Aunt Karen

Anonymous said...

Jennifer, I guess we can be grateful there are alternative methods to assist Kyle in his breathing while giving relief to his nasal passages. I wonder what he would say if he could speak! Yes, it is encouraging that the issues no longer seem to be about his lungs. He has come such a long way.
I found your aunt's questions interesting in regards to the return to Akron. Have you actually been given a green light and a time line in regards to this?
I am more than willing to help if I can do so in any fashion once you return. Laura

Anonymous said...

Wow, what a roller coaster ride of a day you both had!

Even though we expect these "bumps in the road" they still surprise me AND they keep me faithful in my prayers concerning you and Kyle.

Aunt Karen is right, God has taught us ALL lessons as we walk in faith with Kyle. We know that He is faithful to keep that which we have committed unto Him. What a comfort!

I wish I was there to HOLD HIM and you. They both will come in His time.

Kyle's room looks great. You continue to amaze me and make me more proud of you every day.

The best is yet to come,
Love and prayers,
Mom and Grandma Dottie

PS Give Kyle a good cuddle and a big kiss for me PLEASE!