Thursday, May 24, 2007

May 24, 2007

"For you, O Lord, are my hope, my trust, O Lord, from my youth." Psalm 71:5

Okay prayer warriors, we need you again! Kyle had his weekly eye exam yesterday and it showed that his ROP (Retinopathy of Prematurity) has quickly progressed from Stage 1 and is now at Stage 3 in his left eye (right eye is Stage 2). The stages of ROP, numbered 1 to 5, describe what’s going on in the eye, with 1 being very mild problems and 5 being the worst. In stage 3, the ridge has abnormal blood vessels growing off the top of that ridge into the clear jelly that fills the eyeball. These abnormal blood vessels can pull the retina off the inside surface of the eyeball - a retinal detachment. Stage 4 is partial detachment, while stage 5 is total detachment. Once detachment starts, the problems are vastly greater, and blindness can occur. Laser surgery can be done, usually at Stage 4, to stop the abnormal growth and therefore prevent retinal detachment. Kyle's eye doctor has referred him to a retinal specialist who will be evaluating Kyle in the next day or so. PLEASE PRAY THAT KYLE'S ROP CLEARS UP ON IT'S OWN!!!

Kyle has had a busy couple of days now that his various therapy sessions have all started. He is receiving occupational therapy 3 times a week, music therapy 3 times a week and speech therapy everyday. Yesterday he happened to have all three sessions scheduled so it was a busy day for a such a little guy. His occupational therapist says that everything with Kyle is "perfect"! Music therapy was started yesterday. For his music therapy, his pacifier is connected to a machine that monitors his sucking. If he sucks correctly, he is "rewarded" by a lullaby that plays. Kyle did wonderful and had the lullaby playing for the entire session. The bottom picture was taken during music therapy - the yellow objects in Kyle's crib are the speakers. Speech therapy, although slow, is also going well. Kyle is doing everything correctly according to his speech therapist. Because of this, he was allowed to do something they call "finger feed" today. A thin wire is connected to Kyle's pacifier and if he sucks on his pacifier, a small amount of milk goes into Kyle's mouth. He handled it great and was allowed to "drink" 5 cc's. They will continue the finger feeds for about a week and then let Kyle try a bottle. Now that I am over my initial shock/disappointment, it does not seem like such a big deal. In the big scheme of everything, a couple extra weeks in Florida is not such a big deal.

Our big guy is now 13 weeks old! We could not have gotten through this time without your prayers and support. The Lord has definitely given us comfort through all of you.

God Bless,

Jennifer, Joe, Madison and Kyle


Anonymous said...

Jennifer and Kyle,

Wow, up and down the slippery slope once again.

I loved the pictures and the information you shared today will help me be more specific in my prayers. I will pass the request along also to my prayer warriors.

I pray that Kyle's ROP will heal on it's own and that all of the therapy sessions continue to go well.

We are all anxious for your return to Ohio but, it will be in Gods' time not ours. That is OK with me as He has brought Kyle this far and I have faith in His wisdom and love for Kyle.

I'll talk to you soon,

Love and prayers,

Aunt Karen said...

Your Mom said it so well - All in God's timing.
Matthew 7:7-11 (KJV)
7 "Ask, and it shall be given you; seek, and ye shall find; knock, and it shall be opened unto you: 8 For every one that asketh receiveth; and he that seeketh findeth; and to him that knocketh it shall be opened. 9 Or what man is there of you, whom if his son ask bread, will he give him a stone? 10 Or if he ask a fish, will he give him a serpent? 11 If ye then, being evil, know how to give good gifts unto your children, how much more shall your Father which is in heaven give good things to them that ask him?"

We have rallied the troops in prayer, and as we are on the road this weekend, you will continue to be in our thoughts and prayers.

Aunt Karen

Anonymous said...

Dear Jennifer and Kyle,
With prayer all things are possible. I have called on G'ma Phil to pray for Kyle as she now has connections up there. We are hping and praying that his ROP will halt its progression.

We have both of you in our hearts and prayers daily.


Annie said...

I love the pictures - Kyle's eyes are so big and bright and beautiful it's hard to believe that he is having problems with them. He has overcome so many obstacles. Let's pray that God will continue to bless him.