Monday, April 23, 2007

April 23, 2007

“Before they call I will answer; while they are still speaking I will hear.” Isaiah 65:24

Kyle lost a little more weight, down to 3lb. 2oz. (1420 grams). Kyle and Daddy were able to kangaroo for 3 hours last night.

Tomorrow is a big day, they are going to do a lung x-ray and check his blood gasses in the morning to determine whether or not to attempt nasopharyngeal CPAP (NCPAP). NCPAP is in between the ventilator and CPAP. NCPAP provides a backup, similar to the ventilator but at a lower rate. Currently, Kyle receives 20 breaths per minute (bpm) with the ventilator, although he normally breathes above this level. The NCPAP has two prongs that extend through his nasal cavity and provide 10 bpm. With normal CPAP, which they have attempted in the past, there is no backup.

Please pray for Kyle to have a quite night and that the x-ray and blood gasses look good tomorrow!

Today, Kyle’s Occupational Therapist visited him and said he is doing well. His platelet count continues to increase. A couple more tests were performed on his urine and breast milk today to provide additional insight into the CMV. Kyle’s doctor thinks that he might only be a CMV carrier and hopefully the CMV flared up because of his bout with pneumonia.

Tonight feels like Christmas Eve…..a lot of anticipation, not much sleep, wondering what tomorrow will bring.

“For you have been my hope, O Sovereign LORD, my confidence since my youth. From birth I have relied on you; you brought me forth from my mother's womb. I will ever praise you. I have become like a portent to many, but you are my strong refuge. My mouth is filled with your praise, declaring your splendor all day long.” Psalm 71:5-8


Anonymous said...

Dear Jennifer, Joe and Madison,
What difficult times and yet special times you are having with Kyle. My prayers are that Kyle is only a carrier of CMV. I will continue to pray for this and for him to get strong enough for CPAP. He has grown so much! The pictures are great! Love your messages and updates. You all have been so strong through all of this. I admire your faith and courage.
Love you all,
Aunt Kathie

Anonymous said...

Joe, I can clearly hear the concern in your writing. It must be quite an adjustment for you since this is your first extended time with Kyle alone. I do hope you were able to sleep but I know how much tension and anxiety can interfere with normal routines. WE pray not only for Kyle but for Jennifer, Madison and you.
Praying that all news today is amazing! Laura