Tuesday, December 25, 2007
Monday, December 17, 2007
December 17, 2007
Kyle with Joanna
Tuesday, December 4, 2007
December 5, 2007
Poor little Kyle has been under the weather. He came down with a slight cold last week and by Saturday it had turned into Bronchitis. When we put Kyle to bed on Friday, he was a little stuffed up, but when he woke up Saturday morning he was wheezing and his chest was retracting as if he was struggling a little with breathing. Infants airways are small to begin with but Kyle's is further complicated by his chronic lung disease, so any type of swelling in his airway makes it difficult for him to breathe. When we took him to the doctors they immediately began administering Albuterol (steroids) through a nebulizer. The pediatrician warned us that this type of treatment typically is not effective until at least 6 months of age, and with Kyle turning 6 months (adjusted) on Friday, she was unsure if it would help. If treatment did not work, they were going to admit Kyle to the hospital for oxygen support. I am so pleased to report that the treatments worked and began helping his breathing right away! So, the doctor sent us home with prescriptions for Albuterol and Pulmicort Respules and nebulizer, which is an electric machine that that turns liquid medicine into a mist that Kyle can breath into his lungs through a face mask. Kyle is doing so much better now! With his complicated stay in the NICU (pneumonia 3 times, CMV, infections, etc.) we really are so blessed that this is the first time Kyle has been sick since he was discharged from the hospital five months ago. God is great!
Kyle had another swallow study done on Thursday. If you remember, Kyle had two of these done in June, one while he was still in the hospital and another the week after he was discharged. We were hopeful that his swallowing may have matured to the point that Kyle could come off of having his formula thickened, but unfortunately, this was not the case. For the swallow test, Kyle is hooked up to an XRAY machine and fed a bottle containing barium. We are able to watch the liquid travel through Kyle. The first suck they gave him was of a bottle that was not thickened at all, which went into Kyle's airway right away. The second bottle was thickened to the consistency that Kyle is currently receiving, which is called a nectar consistency. We were stunned that this to went in Kyle's airway as well! They then moved onto an even thicker consistency (honey), and Kyle did fine with all of the bottle going into Kyle's stomach as it should. So, Kyle now receives his bottles thickened to the consistency of honey. Since this occurred on Thursday, we have noticed a decrease in Kyle's eating, but we're not sure yet how much of this is due to him having a cold and how much is because of the increased difficulty of eating. Poor thing, think how hard it would be to suck honey out of a baby bottle compared to milk! They are not going to repeat the test again for 6 months, so for the time being we'll just have to manage.
Wednesday, November 21, 2007
Thanksgiving
Saturday, November 17, 2007
Thursday, November 8, 2007
November 8, 2007
Wednesday, October 31, 2007
October 31, 2007
Wednesday, October 17, 2007
October 17, 2007
Monday, October 8, 2007
October 8, 2007
Monday, October 1, 2007
October 1, 2007
Thursday, September 20, 2007
September 20, 2007
Kyle (holding) a straw at 7 months
Monday, September 10, 2007
September 10, 2007
- Total blindness
- Total deafness
- Cerebral palsy
- Down syndrome
- Muscular dystrophy
- Birth weight below two pounds, 10 ounces"
With Kyle's birth weight below two pounds, 10 ounces he is considered disabled (at least until he is one years old and re-evaluated) so he was automatically entered into the program. The government sponsored program that is used to assist children with disabilities in Ohio is called "Help Me Grow." Over the past month, we have had a series of meetings and evaluations with Kyle's Help Me Grow coordinator as well as some Early Intervention Specialists. Last week we received the official report from his evaluations and Kyle is "above average" and "doing much better than expected" in all areas. We received a report on his physical health, emotional development, social development, motor development, language/communication skills, and cognitive development. At the time of the evaluations, Kyle was not quite three months old adjusted age (remember when assessing his development, the doctors count his age from his due date, which was June 7). His scores in every area were that of a 3-5 month old! They said Kyle is actually ahead of where they would want/expect him to be developmentally. Praise God!!! I included the states definition of Kyle's Prematurity above, "a medical condition so limiting we fully expect it to disable a child"...because with Kyle doing so well, it is just another example of the Lord's hand prints in all of this. God has certainly blessed us and continues to do so.
One more note about the Help Me Grow Program...While we have the choice to withdrawal Kyle from the program, at this point we going to have him begin working with the therapists once or twice a month. It is a home based program where his therapist will actually come to the house and we feel at this point we'd rather be proactive with his development and catch any potential problems as early as possible. So, in the next couple weeks a therapist will begin coming to house one or two evenings a month.
Thanks for keeping Kyle in your prayers. Everyday we are thankful for his health and happiness.
God Bless,
Jennifer, Joe, Madison and Kyle
Friday, August 31, 2007
August 31, 2007
Wednesday, August 29, 2007
August 29, 2007
"Now, our God, we give you thanks, and praise your glorious name." 1 Chronicles 29:13
Just a quick note to let everyone know that Kyle is out of surgery and resting comfortably in the recovery room. The Doctor said everything went well with the surgery.....they will keep Kyle hooked up to the monitors overnight for precautionary purposes.
In Christ Alone,
Joe, Jennifer, Madison and Kyle.
Monday, August 27, 2007
August 27, 2007
Saturday, August 18, 2007
August 18, 2007
"The LORD bless you and keep you;The LORD make His face shine upon you And be gracious to you; The LORD turn His face toward you And give you peace." Numbers 6:24-26
Kyle went to the doctors on Thursday and he is now a proud member of the 9 pound club! The doctor mentioned, in a good way, that Kyle is now in the 6th percentile on the Preemie Growth Chart! I was taken aback, as I thought he was in the 30th percentile last time, but it seems I misunderstood. Dr. Marshall had said Kyle was in the bottom 1/3 percentile. What this meant is that Kyle was literally in the bottom 1/3 of a percent, meaning that 99.7% of preemie babies Kyle's age are larger than he is according to the Preemie Growth Chart. Anyways, she said that it is great news that he is now actually "on the chart" as it is a testament to his improving health. The sicker a preemie is/was, the slower they typically gain weight. With his lungs as damaged as they were, Kyle expends more energy than most to complete simple tasks, such as breathing. Despite what the charts may say, Kyle looks like such a big guy to us! The last picture in the group above was taken on May 26th when Kyle weighed close to five pounds, and was used to show his comparison to at the time to that of a full-term newborn. Anyways, Kyle is now big enough to actually wear the sleeper!
Kyle also met with his pulmonologist (lung doctor) this past week and he is doing so well that we do not have to go back unless a problem arises, plus...Kyle was taken off of the heart and breathing monitor that he has been wearing while he sleeps. Praise God!!! Everything is falling into place and we are truly blessed and amazed by how far God has brought Kyle over the past six months.
God Bless you all.
Much Love,
Jennifer, Joe, Madison and Kyle